Ashley Waterman: Supporting Language as a Parent of an AAC User

This week, we share Rachel’s interview with one of her clients, Ashley Waterman! Ashley is the parent of three boys, including her youngest, Liam, an AAC user who has a rare genetic disorder, Cohen syndrome.  Ashley is passionate about connecting families with children with special needs to essential resources, and is a board member of the Cohen Syndrome Association. Ashley shares about the struggle to get Liam diagnosed, Liam’s amazing progress using AAC, ways they have incorporated modeling into the home routine, and more!

 

Before the interview, Rachel and Chris connect with Rachel's Office & Digital Media Manager, Monica Halschishick! Rachel and Monica discuss how they came to work together, how Monica decided to go to grad school for Speech-Language Pathology, and some tips and tricks for improving digital marketing!

 

Key ideas this week:

 

🔑 There are times where Liam requests things he can’t have, and Ashley makes sure to communicate to Liam that what he wants isn’t available. We can’t always give a child what they want, but it goes a long way for us to hear them and acknowledge what they are saying, even if the answer is “no”. 

 

🔑 Liam likes to explore his devices sometimes, like pushing “g” and “o” because he likes circles. Sometimes people will say that an AAC user is “stimming” when a child explores a device and will try and stop it, but allowing AAC users to explore their device honors their communication and supports the visual lexicon. 

 

🔑 Asking permission before we take a device away from an AAC user is really important, even when modeling. While it isn’t always possible to do, having a second device for modeling in the home for the family gives the AAC user more personal autonomy over their AAC device. 

 

🔑 Many children have anxiety in some speaking situations - for kids with disabilities, a lack of communication may be misunderstood as a lack of ability, when in fact they are just nervous. 

 

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